As a Leicester City supporter, I hope you all don't mind me joining your forum, but there is good reason!
My son suffers from a rare chromosome disorder called MECP2 Duplication Syndrome, which affects many aspects of his development. Recently a breakthrough has been made in research and a cure is now a possibility!
Due to how rare his condition is, there is no funding available from the government, so we are having to raise the money ourselves. As his Daddy, I'm not prepared to sit and do nothing to fight for my little boys future!
This season, along with 2 of Ellis' uncles, I will be cycling to every Leicester City away fixture, promoting a text code and number. Anyone will be able to donate to our cause by simply texting MECP77 followed by £1, £2, £3, £5 or £10 to 70070.
We have recently completed the first nine away games of the season, racking up around 1100 miles with visits to Middlesbrough, Derby, Charlton, Blackpool, Yeovil, Doncaster, Watford, Ipswich and Sheffield Wednesday. Immediately after the 75 mile ride to Sheffield on Tuesday night, I headed straight home ready to set off from the King Power Stadium on Wednesday morning for the long 170 mile trip to Brighton for Saturdays game.
We are aiming to arrive on Friday evening as it is Ellis' birthday on Saturday, so the whole family are driving down for the weekend. Brighton as a club have been fantastic and have invited us onto the pitch before the game to talk about the campaign.
More information on the challenge and my sons condition can be found at http://www.textellis.com or you can visit my JustGiving page http://www.justgiving.com/textellis. I really hope that some of you would like to donate to the campaign, even if it is just £1 EVERY little helps!
You can follow our progress on Twitter @textellis or "Like" us on Facebook www.facebook.com/textellis
We may support different teams, but sometimes things are that little bit more important in life and I hope we can join together and make the Brighton leg of my journey a real success!
Richard
My son suffers from a rare chromosome disorder called MECP2 Duplication Syndrome, which affects many aspects of his development. Recently a breakthrough has been made in research and a cure is now a possibility!
Due to how rare his condition is, there is no funding available from the government, so we are having to raise the money ourselves. As his Daddy, I'm not prepared to sit and do nothing to fight for my little boys future!
This season, along with 2 of Ellis' uncles, I will be cycling to every Leicester City away fixture, promoting a text code and number. Anyone will be able to donate to our cause by simply texting MECP77 followed by £1, £2, £3, £5 or £10 to 70070.
We have recently completed the first nine away games of the season, racking up around 1100 miles with visits to Middlesbrough, Derby, Charlton, Blackpool, Yeovil, Doncaster, Watford, Ipswich and Sheffield Wednesday. Immediately after the 75 mile ride to Sheffield on Tuesday night, I headed straight home ready to set off from the King Power Stadium on Wednesday morning for the long 170 mile trip to Brighton for Saturdays game.
We are aiming to arrive on Friday evening as it is Ellis' birthday on Saturday, so the whole family are driving down for the weekend. Brighton as a club have been fantastic and have invited us onto the pitch before the game to talk about the campaign.
More information on the challenge and my sons condition can be found at http://www.textellis.com or you can visit my JustGiving page http://www.justgiving.com/textellis. I really hope that some of you would like to donate to the campaign, even if it is just £1 EVERY little helps!
You can follow our progress on Twitter @textellis or "Like" us on Facebook www.facebook.com/textellis
We may support different teams, but sometimes things are that little bit more important in life and I hope we can join together and make the Brighton leg of my journey a real success!
Richard