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    Stiliyan Petrov - and what I'm going to do about it

    Just a final message to say that we completed the 260 Miles ride on Monday 17th September, and I have just arrived back in England. A very cheesy picture of us in the charity T-Shirts: There are more + GPS positioning of where they were taken on my Twitter page https://twitter.com/JamesLyne1...
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    Stiliyan Petrov - and what I'm going to do about it

    Thank you. very much appreciated :)
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    Stiliyan Petrov - and what I'm going to do about it

    Yeah this picture is a good one, though I really need to clean my mobile phones camera. His skin is quite nasty and dry. Actually the nasty skin is a good sign as it shows the donor cells are attacking his body (and hopefully any residual cancer). Fingers crossed. I really don't want him to...
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    Stiliyan Petrov - and what I'm going to do about it

    I'm flying off to Copenhagen tomorrow, and starting the ride on Thursday. Just wanted to thank all the people who have supported me and donated, etc. I'll post one last time once it's completed. William's ok ish still. His NG tube came out of his mouth when he was sick a few days ago, and...
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    Stiliyan Petrov - and what I'm going to do about it

    THe problem is that remission doesn't mean cured, as we found out with William. The vast majority of children over the past years with AML at the Marsden have relapsed. With Aml it has a nasty habit of doing just that. I think 80% get remission, but for average disease only 65% are cured (5...
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    Stiliyan Petrov - and what I'm going to do about it

    Hopefully. He's improved over the last 12 hours (no squits or sick). So hopefully he has actually shaken it off this time.
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    Stiliyan Petrov - and what I'm going to do about it

    Hopefully early next year. I'd imagine once he's returned to school, he can begin to return to public places. I think it all depends on when they can ween him off the Steroids (which are currently suppressing his immune system). up early this morning as woken by him being sick and squits...
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    Stiliyan Petrov - and what I'm going to do about it

    All good thanks :) Been away taking my daughter to France, then been busy planning the route using garmin base camp. There's not enough hours in the day. Williams still ok, though had a blood clot in his neck where his Hickman line was inserted. The Hickman line has since been removed and a...
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    Stiliyan Petrov - and what I'm going to do about it

    Thanks. He's definately improving all the time :) Just gotta hope it stays that way
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    Stiliyan Petrov - and what I'm going to do about it

    Just a quick update on William. He's now just over 12 weeks post transplant, and seems to be getting better as days progress. More energy, the rash is improving, more like a 3 year old really. So all is good. Here's a picture from a moment ago. The bike training is going ok. Have found that...
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    Stiliyan Petrov - and what I'm going to do about it

    Thanks Gwm. Training going ok. managed 120 miles last week (+ an hour of 5 aside and a swim). 53 miles in one hit two sundays ago. Taking it easy this week as knee giving me a small niggly bit of grief after Shoreham-Newhaven last Sat. think we took the hills a bit too fast. My only issue is...
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    Stiliyan Petrov - and what I'm going to do about it

    William's still doing ok. Here's a picture of him playing with a new toy. It's still a case of watch and wait and the longer he stays well, the better.
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    Stiliyan Petrov - and what I'm going to do about it

    Excellent. I'm sure the recipient will be very grateful. As I think I mentioned a while back, William (therefore I) have a massive debt to pay back of blood. Every person who is inspired to give blood eases my burden that little bit. So that's great news on a lovely day :)
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    Stiliyan Petrov - and what I'm going to do about it

    Will try both suggestions - thanks for that :) I used to struggle with knee pain 3 or 4 years ago, and it put me off playing footy. Then I thought sod it I'll give it a go and that seemed to sort it out. weird. perhaps I helped build them up a bit. knee pain is my worst nightmare really, as it...
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    Stiliyan Petrov - and what I'm going to do about it

    opps sorry. was away last week, and under the weather on my return, so been a bit slack :S. All is still fine with William health wise. His Hickman line (in his chest) decided to stop bleeding back a few weeks back, which is a pain. So they (The Marsden) put him in for it to be removed last...
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    Stiliyan Petrov - and what I'm going to do about it

    Thanks. Bought loads of stuff from Amazon the other day so will try that. :) William's still doing ok. No change really to his condition. Still crossing fingers
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    Stiliyan Petrov - and what I'm going to do about it

    Just an update on William. He's still fever free and his rash is slightly improved, so not much has changed. However his Hickman line hasn;t bleed back for the past few days, so this is a worry as it's not possible to check his blood counts and various levels., We're hoping it'll be ok on monday...
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    Stiliyan Petrov - and what I'm going to do about it

    Just an update on William. He had another check up yesterday at the Marsden and they've upped his steroids a little bit. He definately has low level Graft Verses Host Disease (a nasty itchy rash), but this is good as hopefully it's a sign that he is also experiencing Graft Verses Leukaemia...
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    Stiliyan Petrov - and what I'm going to do about it

    Brilliant, that is so very kind. I really appreciate your support - it helps take the edge of things. :)
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