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[News] Opt out by 23 June to protect your medical history data

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GT49er

Members
Feb 1, 2009
41,713
Gloucester
Last edited:


May 1, 2016
10,430
Oxton, Birkenhead

jonnyrovers

mostly tinpot
Aug 13, 2013
1,178
Shoreham-by-Sea
We've been able to opt out of this for years. It's no big deal. Do you honestly think the NHS would get ethical approval to sell your data??

Remaining opted in enables major research to access anonymised and encrypted metadata showing trends and patterns in health profiles and outcome interventions. This is high level and data will never get shared as individual cases.

Opting out is absolutely your right and you should do so if you choose. I think the major failing here is that the DHSS should have heavily promoted the truth about the project before the media began scaring people with lies.
 

Barham's tash

Members
Jun 8, 2013
3,515
Rayners Lane
We've been able to opt out of this for years. It's no big deal. Do you honestly think the NHS would get ethical approval to sell your data??

Remaining opted in enables major research to access anonymised and encrypted metadata showing trends and patterns in health profiles and outcome interventions. This is high level and data will never get shared as individual cases.

Opting out is absolutely your right and you should do so if you choose. I think the major failing here is that the DHSS should have heavily promoted the truth about the project before the media began scaring people with lies.

Thanks for this very sound and logical synopsis of the reality. Really important type of post in this type of debate.
 


Tarpon

Members
Sep 12, 2013
3,746
BN1
We've been able to opt out of this for years. It's no big deal. Do you honestly think the NHS would get ethical approval to sell your data??

Remaining opted in enables major research to access anonymised and encrypted metadata showing trends and patterns in health profiles and outcome interventions. This is high level and data will never get shared as individual cases.

Opting out is absolutely your right and you should do so if you choose. I think the major failing here is that the DHSS should have heavily promoted the truth about the project before the media began scaring people with lies.

Each to their own of course. You won't be surprised to know that I don't share your confidence or take on the issue. I won't bother rehearsing the alternative interpretation and arguments as they are reasonably well represented amongst various press articles and in the other thread; besides, the purpose of my post was primarily to publicise the issue encourage people to engage and make their own minds up. You can lead a horse to water and all that...
 

beorhthelm

A. Virgo, Football Genius
Jul 21, 2003
33,684
Each to their own of course. You won't be surprised to know that I don't share your confidence or take on the issue. I won't bother rehearsing the alternative interpretation and arguments as they are reasonably well represented amongst various press articles and in the other thread; besides, the purpose of my post was primarily to publicise the issue encourage people to engage and make their own minds up. You can lead a horse to water and all that...

thats a shame as i havent seen a coherent reason to object beyond paranoia. as said in the other thread, i reckon you didnt know your data wasnt shared within NHS. this collation of data will advance medical research, enabling researchers to look for patterns, track improvement or declines in response to treatments. but people will opt out because they simply respond to a negative campaign.
 

Harry Wilson's tackle

Harry Wilson's Tackle
Oct 8, 2003
40,646
Faversham
We've been able to opt out of this for years. It's no big deal. Do you honestly think the NHS would get ethical approval to sell your data??

Remaining opted in enables major research to access anonymised and encrypted metadata showing trends and patterns in health profiles and outcome interventions. This is high level and data will never get shared as individual cases.

Opting out is absolutely your right and you should do so if you choose. I think the major failing here is that the DHSS should have heavily promoted the truth about the project before the media began scaring people with lies.

My thoughts too.

But it shows the extent to which we expect Boris to attempt a cheeky bum**** while we aren't paying attention that has give this story so much legs Two legs, even.
 

Harry Wilson's tackle

Harry Wilson's Tackle
Oct 8, 2003
40,646
Faversham
FWIW, I'd like to see all our data, medical and social, captured online, albeit anonymised. The advances from information would be sublime. I work in medical research (among other things) and getting representative data to play with is a total bugger.
 

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