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They do get help with carers allowance but just goes mainly on traverling costs. They also take Emily's older brother to sibling groups counciling sessions. Thank you for your thoughts.

No offence and certainly will not be taken in the wrong way. It was good of you to spend the time and have a read. It's just as much raising awareness of the horrible syndrome as it is getting donation's. But just to give you an idea of costs a specialist wheel chair with a carry cot for...

www.gofundme.com/hope-for-emily-rose