We meet with doctor Reid and his team once a month,doesn't seem the same as talking with people that have had a child or other that have been there done it
My son has had it and now we are left with the after bit,high blood pressure,reduced kidney function and as it's a rare thing( our gp has not treated anyone with this in 30 years)it hard to fined people that are recovering or had it in the past,from what the doctors say it's a bit of a lottery...
If I could ask why some of you need dialysis,I'm trying to get a better understanding of kidney function reduction and how it affects others,we've struggled to find answers on haemolytic uraemia syndrome,lots on searches but hard to find people living with the after affects
I'm glad I've got two,my son mite one day need my other one.the kidneys do everything,and when working right are like nothing else in the body,our son got HUS from e.coli at two years spent 6 weeks in London's evalina hospital